So I’m in this weird place between calm and freaking out. Tomorrow I have a PET scan that will change everything.
I suppose I should start at the beginning. Sometime back in May I noticed that my chest hurt when I bent over. It was brief and I tended it forget about it.
By June, my chest would be tight, so I thought it was iron bra syndrome which is very common with reconstruction. Ibuprofen gave it some relief but it kept getting worse.
The last week of June I went to my PCP (primary care provider) who diagnosed me with costochondritis. I started take round the clock NSAIDs, which helped for a time. It got worse through the month of July. I saw my oncologist who ordered a PET scan to rule out mets to the lungs which my insurance denied. I’ve written about my anxiety before. Well I think it got the best of me the Monday after the scan was denied and I ended up in the er where they gave me a ct scan to check for clots.
By the next Monday, the NSAIDs weren’t doing anything for my pain and the lack of sleep was taking its toll. This is the part where I get all gushy about my PCP. She basically took charge and said enough is enough. She immediately gave me some low dose meds for my anxiety which is pretty much the only reason I’m holding it together right now. Prednisone for costochondritis and pain killers so I can finally get a decent nights sleep.
She tracked down that ct that was done in the er and had it reread and sent to my oncologist. Unfortunately, it showed a suspicious hole behind my sternum and maybe some lymph node activity. Well, my oncologist got on the phone with my insurance and finally got the PET scan approved for tomorrow to look for bone mets.
So no matter what the PET shows tomorrow. There should be some sort of plan in place by Monday.
So that’s where I’m at.
6 responses to “Calm before the storm”
Judy
August 10th, 2012 at 06:11
A plan is what you need. Enough of the limbo stuff. Wishing you the very best.
Lauriel
August 10th, 2012 at 08:04
I’ve been thinking of you pretty much constantly since yesterday evening. I am hoping hard for some good news for you very soon. You know how to find me if you need someone to talk to – someone who gets it and you don’t have to protect. xo
StarSpry
August 10th, 2012 at 11:09
I’m glad things are happening to give you some answers and a plan! I’m praying for good news for you!!
cheryl
August 11th, 2012 at 08:33
Praying for you Nicole. I know how frustrating it is to worry about pain that does not go away and not being listened to by the doctors. Sounds like your PCP is stepping up and going to battle for you. I hope the weekend goes by quickly and you get some good news on Monday.
Sophanne
August 11th, 2012 at 09:01
Still thinking of you… Even before I read this post. You were with me when I walked the dog this morning as a source of strength and inspiration. Whatever it is, you can do it.
kariberi
August 13th, 2012 at 19:28
Let me know how I can support you.