Lymphedema. Bleah. Next to chemo it’s sort of the other great unknown in the cancer world. I know BC (Before Cancer), I had never even heard of it. I take that back. I had heard of it by watching those shows about the really big people on the Learning Channel and it was primarily in their legs. It was definitely not something I associated with cancer.
I had my evaluation last Monday, and I was right. My left arm was 2 cm larger than my right, and my left hand is swollen. It hasn’t spread to the fingers yet. I’m currently in a temporary compression sleeve until I can get the permanent one. And the gauntlet. Yep. Gauntlet. Awesome. The lymphedema therapist recommends I wear it 5 out of 7 days. For the long haul. I’m not sure how I feel about that. Annoyed mostly. I also have been doing Lebed exercises to open the lymphatic channels.
Some of my girls over at Mothers with Cancerhave been dealing with this for a while and have been very supportive. (Still waiting for that lymphedema post, WhyMommy. *grins)
4 responses to “The L word”
Spruce Hill
March 16th, 2009 at 07:09
That sucks! I have a friend in my support group who has a full wrap like whymommy. We need more posts about this subject! (Hint hint)
No Lymphadema here yet, But I am being very aware 🙂
Nancy McCarroll
March 16th, 2009 at 10:00
Did I previously write you about “http://lymphedivas.com” ; if not, it is a good website started by three women friends with breast cancer.
beeeeeeeeeee
March 16th, 2009 at 12:57
Yay for finding long-lost rings. Boo for Lymphadema.
sophanne
March 16th, 2009 at 16:38
I hate lymphadema. If I see it I’m going to kick its ass.