Archive for July, 2008

Gotta love the Onion

http://www.theonion.com/content/node/41449

Gotta be a typo.

In about a month, my baby, my firstborn enters kindergarten.  I’m sure there will eventually be a heartfelt, emotional post about that.  Right now I’m staring at the supply list.  Most of it I understand because they have communal crayons and markers.  But 20 gluesticks?  From each kid?  That’s like 400 gluesticks!  Please tell me that’s a typo.

Clinical Trials

When I was first diagnosed with breast cancer, I was encouraged by more experienced cancer patients to ask about clinical trials.  As it turned out, I didn’t have to as my oncologist had already found one for me to take part in.  I have always been a fan of participating in studies when possible.  L is in the DAISY study that tracks kids from birth who have one or more gene markers for diabetes so when it was my turn, I knew I wanted to participate.  Still pretty freaked about by the whole “I have breast cancer” thing, it was important to me to know that I would still get the standard of care in case I was in the placebo group.  Once I was assured, I joined the Avastin study for Stage III cancer patients.  For the most part I think my chemo experience has been pretty on par with people who were not on Avastin.  My only side effects were increasingly lengthy nosebleeds.  So Tuesday, the study was unblinded and I did find out I was not in the placebo group and was in fact taking Avastin.  (Not a huge surprise to the doctor and nurses, though I guess there was an office pool and one nurse did lose.  My low blood pressure tricked her.)  I also found out that I’m on the arm of the study that is finished taking the drug.  I can’t tell you how relieved I am of this.  I would absolutely take part in the study if I were to do it all over, but knowing that my last Taxol in two weeks is my last chemo is wonderful.  The nosebleeds were getting scary and I’m ready to enjoy my month off before RadiationLand.

So cool.

Stole this from MaryKay.

This guy rules.

Fresh Air

This weekend, Big J, the kids, and I made the looooooooong drive up to the cabin Big J’s sister’s family and his parents built.  (BTW, thanks to the Willis clan for lending us the DVD player.  Listening to Finding Nemo and Thomas the Tank Engine was MUCH better than last years crying jags.)

So, here’s where we stayed.  On top of a mountain!

The view from the kitchen!

A weird moth!

L pelting Daddy with water balloons.  (Actually, all the kids pelted Daddy with water balloons.  Mama doesn’t do water balloons.  Heh.)

J catching duckies.  They say “Wack wack” in J speak.

And the best part about this weekend?  9000+ feet and no nosebleeds!  Well actually, that wasn’t the best part of this weekend.  Having a weekend away from Cancerland was pretty much priceless.

Independence Day

I had a wonderful weekend in the mountains with my family which I will blog about later.

Today I learned that she died.  Her words are as always, eloquent and important.  I didn’t know her except through her blog.  I never even left a comment.  It makes me sad and somewhat angry.    Sometimes I hear people complain about how breast cancer is the “popular” cancer, sexy and pink, thanks to an abundance of pinkwashing and media coverage.  They need to be reminded that breast cancer is CANCER and this weekend it took away someone’s wife and Mommy.  Peace be with you, Andrea.

*sigh*

I’m so done with this.  Cancer.  Emotionally.  I’m tired of feeling like crap.  I’m tired of new side effects.  Now I’m getting Nosebleeds with a capital N.  I had 3 Tuesday and 2 more last night.  The last one resulted in an ER visit.  I know I scared my poor wonderful neighbor who rushed over to take care of the kids so we could go. Four hours and really the only thing they could do for me was give me a plastic nose clip.  The doctor couldn’t find the bleed so he couldn’t cauterize it and the other alternative is literally a balloon up your nose that they call the Rhino Rocket.  Sounds like something you could buy on the back of a comic book.  Unfortunately the RR can only be used for 48 hours, is very uncomfortable, and won’t guarantee that I won’t start bleeding once they take it out.  With the holiday weekend coming up, we opted for the nose clip.

I’m so done.  Except I’m not.

I adore Joss Whedon.

Dr. Horrible.  Check it out.

Teaser from Dr. Horrible’s Sing-Along Blog on Vimeo.